Have you been wondering if high-intensity impact training(HIIT) is something that you might like to try? We recently wrapped up a 4-week series with Tim Sweeney where he guides you through the concept of HIIT, the elements of a circuit, how to create your own HIIT routine you can do at home, and how to handle setbacks.
The series is up on our website under programs in our on-demand tab. If you’ve been wanting to try circuit training, Tim’s program is ready to go whenever you’re ready. You won’t need any equipment! Just put on your favorite tunes and get ready to sweat! 🤜🤛
If you’d like to get a fix of HIIT in a live class, Tim teaches TODAY. Link in profile to reserve your spot!
April fools, the kids and mummy told me that my boss had rang and that I had to go into work☹️ no fair! Pulled off the drive to a phone call and a chorus of "April fooools". They thought they were so funny until I told them it was my plan all along, MMWAHAHA (evil laugh). Tricks on you boys, they are not happy........... I still had to get in my work clothes though 🤔 #aprilfools#isolation#cf#cysticfibrosis#cfwarriors
6 61 hour ago
Having a little one with respiratory problems can be extremely stressful and challenging, especially when your child doesn't want to follow through and complete treatment.
This is where the #Owgels nebulizer comes in! You can now make treatment #Fun !
Owgels is silent enough to use whilst watching TV #distracting the little ones and making the whole process smother.
YAY! For the little victories in our lives, especially in these distressing times!
How cool is this? @beam_cf is a website that offers live and on-demand exercise classes for people with CF along with motivational support. The company hosts a variety of classes led by instructors either working in or living with CF.
The generous team are offering 2 months access for free with promo code BEAM-STAY-WELL (you don't need to enter any card details). Check it out, and take advantage of this awesome opportunity.
0 11 hour ago
I'm actually crying writing this and for once, I’m skipping April fools! -
Me and my family have been campaigning for cystic fibrosis pretty much all my life. Even though I love a challenge, I always knew that reaching 32 was never guaranteed. -
I’ve just received a package that could be life changing for me. Even though I'm pretty fit and healthy, I've always wondered what it must be like to breathe with a working set of lungs. -
I'm hoping these drugs get me one step closer to that. The future looks so bright for children with cystic fibrosis all over the world and I'm so happy to have witnessed and experienced this day. -
To everyone who's helped me reach this day, thank you. To all those incredible people who campaigned for these drugs to be available on the NHS, thank you! I'm off to add 2 more tablets to my daily 50 and I'll keep my fingers crossed that these things help me become even fitter. -
(bit of an older pic.) Oddly enough, when I have started feeling the most misunderstood, COVID swept the nation. Suddenly, the words and frustration I was trying to express about isolation and being cooped up was understood by everyone. Being stuck in one location for a prolonged amount of time was understood by the general population. People are understanding the itching from the stir-crazy. People are understanding what isolation does to your mind and body.
A part of my life I’ve spent years trying to explain, suddenly I don’t need to explain anymore. It’s comforting in a way. We all feel it now. It feels better to be in isolation along with everyone else than it does to be in isolation by myself, desperately trying to explain my emotions through a screen.
With this being said, isolation is hard. It sucks. It feels like prison. But please... know you can get through it. We all can. Together.
My DM’s are always open. #cysticfibrosis#cflife#isolation#gowiththeflow
No recent people pictures today. As I social distanced, sitting on opposite sides of our fire pit, with my mother in law, I was thinking about how odd things are. Outside only. No hugs. No places to go. No plans to make. Just sitting and watching the animals. Our family, like all families, finding our way through social distancing vs isolation. We are an allergy family. Every time someone sneezes I make them take their temperature. We are still healthy. Well our healthy. Brooklyn’s sinuses are a mess, and I’m guessing her sinus surgery will be postponed. I just keep my eye on everyone, and remind myself it’s allergy season too. Allergies, asthma, cf, and crappy sinuses don’t go away because there’s a pandemic. Those daily symptoms are all there all the time. So I’m mindful and look for anything different from our norm. We hope you’re all healthy. Our bubble is still intact. I think most spread will come from those without symptoms. Interactions with those people at work or the grocery store. It feels like a time bomb. Not if someone you know will get it, but when and who. 🥺.
1 154 hours ago
Please do not become complacent. The laws are there for a reason, please stay home, stop socialising - there is NO exception to the rule, I am extremely passionate about this because I HAVE to be, this is who I’m protecting. #slowthespread#cysticfibrosis#covid19
47 7865 hours ago
Делаем, как умеем, без спорт. инвентаря🙄
I ended up in the worst possible place last night. The ER. It was by far the scariest ER visit I have ever had. My husband was turned away at the entrance and I was greeted by tension, hopelessness, and fatigued hospital workers who are taking it “one day at a time.” The Dr. who treated me was wearing goggles and a military grade gas mask. Thankfully, I didn’t go due to Covid but to an emergency transplant related issue. Please, do not be tempted to make this a political issue or a financial issue. This is a LIFE issue. Stay home because there is no magical supply room in America that is hiding all the medical equipment needed to sustain the whiplash of this demonic virus. Last night was one of the hardest in my 34 years of dealing with Cystic Fibrosis and Lung Transplant. Most people can’t swallow a Tylenol, this isn’t for the faint of heart. 💔
That breath you just took...that’s a gift. ⠀
For the month of April we will be donating 100% of all proceeds and donations to at risk and vulnerable people during COVID19. We will be supplying deliveries, gift cards and financial assistance to those in need. To support, shop at jwlsofficial.com or donate directly at julialyonsfoundation.com. 💜⠀
If you’re an at risk individual suffering from CF or a related illness, and in need support, please contact us at email@example.com. We will do our best to support as many as possible.
New blog for the Cystic Fibrosis Lifestyle Foundation:
Protecting Our Healthcare Heroes! 🏥 "There’s a broad spectrum of people that make up our care teams. All are knitted together in the tapestry of our individual worlds. Each one plays an important role in our wellbeing. This is how we survive tough times that happen all the time to us.
It’s our turn to protect our healthcare providers. Allow them to do what they’re experts at: providing care. Our job is to stay home, get out of their way, and keep each other safe from the corona virus." Read the rest! #linkinbio 💁
Bueno llego la última noche d tres.Mañana nos separamos d cuadrilátero.No pudimos contra el decreto del Gobernador q no permite q el personal de salud en situación de riesgo tome distancia de esta pandemia.Y al ser un virus desconocido,nadie en el mundo, q conozca un poco de fibrosis quistica nos aconseja q fede siga conviviendo c nosotras.Él aunque no se contagie (el 15% del personal de salud se contagia) va adquiriendo carga viral y eso también puede contagiar a Bernardita.Lo q iría totalmente en contra con lo que venimos haciendo desde q ella nació y fue diagnosticada,cambiamos todo en nosotros p adaptarnos a la manera en q ella estuviera lo más saludable q se pudiera.Y así haremos siempre. Hemos dejado en el medio la vida como la concebíamos, la amistad, la familia.La manera de relacionarnos y comunicarnos todo dejamos de lado. Para enfocarnos en su salud y nada más q su salud. En ese camino quedó mucho afuera.Pero sumamos amigos Marce-Gabi ellos conociendo de Fq nos ofrecieron una casa. Al ser berni de alto riesgo no puede compartir baño ni habitación. Lauri y Pachi también nos ofrecieron un lugar p vivir.A Dios gracias por ellos, Son extraordinarios.Aún así seguíamos en riesgo. Así q la solución quedó en la mudanza de papá. Siempre hemos peleado a un Lado y del otro del mismo cuadrilátero.Siempre intentando superarnos p ser los mejores cuidadores de nuestra hija. Pero esta batalla de seguir juntos en esta pandemia, la perdimos. Tenemos otra guerra en pie desde hace 3 años. De la q no nos vamos a dar jamás el permiso de abandonar ni de bajarle la guardia. No podemos bajar los guantes.la Fq no tiene días libres y nosotros necesitamos toda nuestra energía p seguir en el ring. Que esto pase rápido papá.Nadie sabe lo q te necesitamos.Esto es un descargo.No pido consejos. Ahorrenme leer lo q otros q pueden ver a sus hijos dormir cada día y abrazarlos me pueda decir.Banquen leer un descargo sin opinar. O no me lean. Y si, volví a las redes. Pará hacer este tipo de desahogos.Que los políticos le contesten a mi hija cuando pregunte por su papá. #lamendozaqueindigna #saludprecarizada #nadiedefiendealpersonaldelasalud #cysticfibrosis #gobiernodemendoza
14 178 hours ago
Yay! The website is now LIVE ‼️You can go ahead and click the link in the bio to start ordering. Remember to use “MAJESTIC” to get $$$ off at checkout 🛒🚨 @majesticdetox_ .
With everything going on in the world at the moment, we thought it would be helpful to start some support groups. This is how our founders met, and within months we gained lifelong friends. It is so important for those with chronic illnesses to have people who they can relate to right now. Even though we are physically distant, we can still make new friends! Click the link in our bio and fill out the “Support Group Applications” google form. Within the next few days we will review your application, and put you in a group instagram DM with others like you!
(P.S, since this is online, we ARE accepting young adults over 18 and those who live in places other than the USA!)
I'm delighted to share that Monkey's Love has been included in Issue #4 of Please See Me. ‘Hope' is the theme for Issue #4 - but I'm giving you fair warning that you may need tissues - because making my readers cry seems to be my speciality.
[Image Description: Top Row: Wording Please See Me | Home Issues Submissions About | Non Fiction Issue #4 : Hope March 31st 2020 | On the Left a Photo of Monkey - a Terrier Heeler Cross on the Right wording Monkey's Love by Sandi Parsons]
Begin your pursuit of Respiratory Health and Hygiene with a SALT FX® Halogenerator from SALT Chamber, the industry leader in salt therapy products, equipment, and decor.
Our halogenerators are UL Listed, CE Certified, manufactured by a medical device facility, produce the smallest micron particle size, include a spare parts and cleaning kit, and have a US-based, on-premise Service and Support Center.
Happy Thank You Tuesday!
This week, we'd like to recognize Linda Caul the team leader of Run for Roses and Ride for Roses, which are her family's Great Strides and Cycle for Life teams. Linda and her husband, Jeff, manage The Rose Foundation, which is a charity organization that benefits CFF in honor of their daughter, @katie_caul_kirby, who has #cysticfibrosis .
In 2011, @inspiremovement_llc ran 1,000 miles from St. Louis to New York City over 65 days to spread awareness, raise funds and share stories of #CysticFibrosis for her sister, Katie. The Caul family then created the Rose Foundation in honor of this endeavor, and the Cauls have since raised over $225,000 for CFF!
Every year, the Run for Roses team hosts a trivia night that directly benefits their #GreatStrides team. The family has not given up fundraising this year - despite facing a global pandemic! The Cauls and their huge support system rescheduled their April trivia night to July, in order to stay safe during the #coronavirus outbreak.
The CFF - Gateway Chapter would like to give a huge thanks to Run for Roses, Ride for Roses and the Caul family for their extreme dedication and commitment to curing CF! #UntilItsDone#ThankYouTuesday#covıd19
Missing these munchkins rn, and knowing they're growing so much as I post this. But more than just gush over how cute they are (I mean, they're freaking adorable!!!), I want to share about the fundraiser I'm participating in, Great Strides for the Cystic Fibrosis Foundation. Because one of these kiddos has CF and possibly wouldn't have grown so much if it weren't for the CFF's dedication to finding lifesaving treatments and medications that help people with CF breathe better, grow more, and thrive. If you'd like to know more about CF, the foundation, or if you can donate to the fundraiser, check out the link in my bio!! #greatstrides#cysticfibrosis
Do you live 👩🌾rural and are eligible for NDIS? We would love to have you work with our experienced allied health professionals to get you moving ONLINE!
As a registered👩🏻🦼 NDIS provider, we can assist you in many ways, including:
🏋️♀️ Exercise physiology
🏡 OT •
Comment below to get more information on our specialised NDIS physical therapy programs that we run from the comfort of your own home. ☎️ Or simply call us on 1300 630 204.
We are excited to dedicate the month of April to being GRATEFUL. Each day we will highlight a group of people for whom we are grateful, especially those who are working during the pandemic to protect, provide and heal so that everyone else, especially those who are at higher risk, can be safely at home.
With each post you’ll have the chance to tag someone you know who is serving. Feel free to share a photo or a special message. We’ll choose one each day to receive a care package from the Legacy Foundation to show them our gratitude.
We hope you'll join us in giving thanks in April. 💜
Day three. Lets throw some sprouts into the mix!!!🌱🌱🌱🌱 My starter seems to be starting in spite of me doubling the water and flour yesterday.
So i have decided to make alfalfa sprouts too. This I've done, so I am a bit more comfortable with this process.
This was in. No way intentional, but now i will feed my starter and rinse my sprouts both twice a day. Easy peasy.
I did NOT plan that. However im pretty jazzed this is working out so well.... Xoxo, 🍞🌱
Better_baking (and Sprouting)_brookie
Let me do you a favor, a year ago, March 2019, this is the result of the common cold. •
I understand that you being home is exhausting, believe me.. I get it. I get the inconvenience of juggling the daily to-do on top of mommin’. It’s hard as shit! •
I get the constant let down of all the cancellations that continue, but while this is all so new and aggravating for you and your family.. your lives will go right back to the “norm” without skipping a beat.
Though we are far from strangers to isolation, precautions and protection..distance is our best defense each and everyday..and will continue to be even when everything goes back to “normal”.
I’m going to tell you what’s more exhausting than quarantine.. uprooting your world to live in a hospital, living in isolation in a hospital, watching helplessly while medical professionals pin your children down just to put in an IV, holding your babies while an anesthesiologist sedates them in your arms, listening to your child scream while you sit on the other side of the door, listening to their piercing screams they’re being poked or masks being held to their faces, unable to comfort those exact screams because the presence of Mom will break the sterile field, laying awake through the night listening to IV pumps beep and nurses coming and going, the weight of the guilt that you carry because you just need 10 minutes!
What’s suckier..is that it will continue to be our norm. So remember, if they become ill with anything, it won’t be because I didn’t do EVERYTHING in my power to keep them safe. •
Can you name every person you had contact with for the last 14 days? Can you name every location you have been in the last 14 days? •
If you aren’t 100% certain with your answer, you’re not doing enough. •
As #SocialWorkMonth comes to a close, COTA would like to once again extend our gratitude to #socialworkers around the country. Thank you for your generations of life-affirming work and positive impact on #transplant families nationwide.
Hola, soy José roa 37 años de ronda (malaga) España.
diagnosticaron fq a los 18 años después de pasar una neumonía.
La fq la llevo mejor desde que me operaron hace 2 años me gusta mucho hacer bici y trail.
Mi consejo no dejéis de hacer deporte y luchar.
Que el futuro de los nuevos fq con suerte no llegaran al trasplante
I spent twenty-four days in the hospital last fall hardly leaving my room and never leaving the floor, had been pretty much bedridden the week before I went in, and spent another three weeks at home on IV meds. Not unusual for someone with #cysticfibrosis Because of my illnesses and certain medications my immune system is sketchy (to say the least) so I’ve had very few outings since then. After being home a week from hospital though, I was desperate to go somewhere, anywhere, but knew I couldn’t go far or for very long. So my mom drove me over to @beeyoucreativestyles (the most magical clothing store ever!) at a time when it wasn’t busy and I found a pile of treasures including this super groovy coat. I waited and waited (and waited) for flu season to be over so I could wear its magnificent verdance out for dinner with my galpals. Since that dinner is obviously not going to happen any time soon I decided to just wear it on my walk anyway today! So here it is: with fantastically fluffy collar and without. 💚 The morals of the story are: I know some of you are going a bit nuts having to stay home but you will get used it, trust me. If my busy and random Gemini/Vata brain can stay in one room for that long and be housebound for longer then I know for sure that all of you can too! And have things to look forward to but don’t wait forever to find a way to enjoy them. Instead of dinner, we are having a Zoom (I didn’t know what Zoom was until last week..) cocktail party and I will wear my coat with collar then! #carpegreenum#staythecourse#youcandoit#findfun#ididbrushmyhairyoujustcanttell
Foto di chi ancora non sapeva che stava per ricevere una brutta notizia. • Io ero perfettamente consapevole dell’immensa fortuna che avevo a trascorrere la quarantena nella mia casa, con la mia famiglia, le mie comodità, la gioia delle piccole cose che si possono fare anche senza uscire. Io lo sapevo, lo sapevo bene, non mi sono mai lamentata, anche se il respiro andava meglio e avrei potuto finalmente godermi un po’ di vita normale. Ma la tranquillità, se tranquillità si può chiamare un momento di fiato nell’attesa ormai eterna di un trapianto di polmoni, evidentemente non fa per me.. non fa per noi. Il trauma al port a cath ha scatenato un’infezione e l’infezione ha riacutizzato la mia nefropatia, perché sì ho anche quella, che la fibrosi cistica non era abbastanza. I miei reni non stanno più funzionando e domattina mi ricoverano in ospedale per iniziare boli di cortisone e cercare di farli ripartire. E no, non è un pesce d’aprile. Solo uno scherzo amaro del destino.
Ma tengo duro, perché qui, come sempre, non si molla un cazzo. #stayathome#cysticfibrosis#cflife#nonsimollauncazzo#fibrosicistica#hospital#enjoythelittlethings#mylife#justbreathe 💪🏻
The panic surrounding COVID-19 is scary and very unpredictable. It’s an ugly virus trying to creep itself into our world with no signs of letting up.
Cystic fibrosis is the same, in a sense. We fight everyday to keep Knox healthy. In doing so we have to limit our exposure to outside factors, constantly wipe & sanitize everything he’s touching, preach hand washing and keeping our hands to ourselves at all costs.
Knox has a lung disease and he’s of the small percentage that this virus is most deadly to. If for no other reason, please take this all very seriously and understand that our everything is on the line right now. To everyone who continues to check in with us and make sure he’s staying well, you are so dear to us! We’re holding tight and staying home at all cost. Please keep Knox and all other immunocompromised people in your prayers during this scary time.
Community is so important, now more than ever! So keep the prayers coming, the wine pouring & all the germs to yourself!
Pulled an all dayer today; it was rough 🙃
This is the only way I’ve been getting through self quarantine. Sleeping all day. It’s been rough but being trapped somewhere for weeks at a time is something I’m used to (tune ups in the hospital). This time it’s much better because I have all my stuff with me.
Im just here to remind you all again to #stayhome . It’s not the time to be seeing your friends or going shopping — even if we are on lockdown and everything is closed lol. So, wash you hands, learn something new idk, but stay home please. If you aren’t doing it for you, do it for the others. Those who can’t protect themselves and those who will get very sick or even die from this virus! Think of your grandparents, your friend with diabetes, me (CF)etc. #cysticfibrosis#cfirl#iucpq#lafknattendpas#fibrosekystique#mucoviscidose@cystic_fibrosis_canada@fkcanada_quebec
8 18325 March, 2020
Sorry folks, forgot to update. I AM CORONA FREE!
I was sick for about two weeks with fevers, shortness of breath, and sinus congestion. To be honest it felt like the old times. Started to get a little nervous like I used to when I’d end up not being able to kick it and had to be admitted. Luckily this time I did. Test results came back negative earlier this week. It’s a new me, a new chapter, and would not be possible if this was a year ago when I was without Trikafta. Happy to feel healthy. Lets goooo!
I remember when I started to come out of the darkness after Alexis was born and diagnosed. I can’t pinpoint a specific time of when that happened; only realizing as I look back that the darkness eventually lifted and life became whatever version of normal it was meant to be. And I was changed completely. Jesus became real and simple. He changed my heart: softened and whole. I saw the world differently. I saw my kids differently. I saw life... differently.
That’s what grief does. It changes you. The journey is hard and dark and frightening. I won’t say the journey ever really ends, just takes breaks sometimes. Breaks that get longer and stronger and more joyful.
I feel like the whole world is grieving in some form or fashion right now. Whether the grief of sick or lost loved ones because of this pandemic; grief over a life you miss and hope to return to. Whatever you’re grieving - I hope it changes you.
I hope Jesus uses these moments, this snippet of your story, to heal what’s broken so we all come out of this changed.
I hope we come together as a nation more compassionate, more aware of ourselves and our people.
I know we’ll always look back at this and grieve something, but I hope this darkness becomes something you look back and realized made you different... softened and whole.
Keep going, Dear Ones. We’re going to be okay.
9 14230 March, 2020
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