I haven’t really shed a light on one of the biggest challenges in my life. I suffer with severe and extremely debilitating migraines. Since I was about 10 or 11 I have suffered with migraines that I used to call “eye aches”, they would hit fast and hard causing me to scream in pain.
It’s easy for a young child to exaggerate about pain, but this was different. I went through MRI machines and different neurologists. No one took me seriously or really wanted to help. My hospital visits got more frequent as I hit my college years because of this...
Since no one took me seriously I was never prescribed anything for my pain.i was only given pain medications such as morphine. Yes, it’s so smart to give a young student morphine... this sent me on a mission to solve my problem. My migraines were keeping me from classes because I would suffer for days on end. Nothing over the counter helped and I was just shuffled in between doctors and emergency rooms. Prescribed meds wouldn’t work or made me basically a zombie everyday. I’m very lucky to have something that relatively works well with lesser side effects.
Why am I telling you this? Daisy helps as much as she can, but unfortunately I don’t know what kinds of migraines I have. I have so much pain that I can’t even think and I can barely function. This happens a lot... Getting through everyday is a struggle, but at least when I have a migraine I can rely on daisy to either (try to) guide me (she’s learning) to my S/O or retrieve items for me. Bending is a nightmare with a migraine (if you know you know). Her ability to help me in these moments has improved my quality of life tremendously.
She’s not just here for my anxiety, she’s here for my overall well being. I don’t think about my migraines too much because it has just become my life over the past ten years, but I wanted to share something about me. I know someone out there can somewhat relate to this. Give your pup an extra squeeze tonight and tell them how thankful you are for them :). They may be just a part of your world, but we are the world to them. •
Dear Santa, I can explain... 😉🎄💕. Rivy had a fun Saturday! Thanks to his grand-paw-rents, he got to go to the dog gym even though I wasn’t feeling well enough to go; they rock 🙏. They had a couple errands to run afterwards and bright River with them so he got some public access work in too ☺️. He did awesome! 🙌. He was a pretty sleepy boy after his busy afternoon but we played with toys for a bit and then he crashed which led to really nice cuddle time 🥰. Hope you all had a great day! Have a good Sunday! 😘🖤🐩🐾
1 710 minutes ago
Today, we conquered an item on my socialization checklist. ✅ Those that know me know how much I truly struggle attending events that involve crowds. Sporting events, of course, included. I have been putting this off for a while, but tonight my wife and I decided to attend a Vanderbilt men’s basketball game. The staff at the box office was super nice and we were able to trade out our seats for an area a little more accessible to us. River was a little nervous walking to the gymnasium, as we still need to do some work socializing him in the busy city limits. Once we got there, he was still a bit nervous, but once we got where we were going, he was much better. He executed an “under” and a “settle” quite well and remained in a downstay until we left after halftime. He wasn’t the most sure about the band (a couple of sections over) initially, but after the first couple of times they played (swipe ⬅️ to see), he didn’t even bother to lift his head. I’m also pretty sure he even fell asleep at one point. All-in-all, Vandy lost, but we’re counting tonight as a win. 👏🏻👏🏻👏🏻 #AnchorDown ⚓️ .
You can get this bandana to show your ‘Dore spirit at @thewanderingpupco for 15% off using code “River15” 👀
DISABLED IS NOT A BAD WORD! I struggled since 1997 with chronic pain, illnesses, migraines, and seizures without knowing why. I stumped doctors as well. I was diagnosed with lupus in 2011, which finally put me on the right track to regaining at least some of my health. I have struggled to even function, had pneumonia and was hospitalized for it when I was 27, and have fought to even hold a job, amongst so many other struggles. Throughout all this, I have lost friends because they couldn’t handle my health problems and everything that goes along with that. I have had more than one significant other ditch me while I was hospitalized. I have heard the phrase “but you don’t look sick” so many times that I want to smack people when they say it. I have been called lazy, a burden, a hypochondriac, and so many other ridiculous things. All of these things have made me a stronger, more resilient person. It had taught me how to face obstacles head on and without fear. It has taught me that I have so much more strength that I ever thought I would. It has taught me the value of true friendship, and how to avoid creating and staying in relationships with assholes who can’t handle challenging situations. And while yes, I do know how my disability has limited me in living the life I planned on having, but this has taught me how to adapt to any situation and make something positive out of it. I am finally in remission, but that doesn’t mean I no longer struggle. I am losing function of my hands. I get lightheaded and faint regularly. But I wouldn’t be the person I am today without all of these things. #changethelabel#changethedisabilitystigma#servicedogintraining#servicedog#greatdane#lupus#lupuswarrior#autoimmunedisease#hashimotosdisease#celiac#chronicpain#migraine#seizures#nervedamage
Today was not one if our more “glamorous” training days. Today we went training at the pet store! We went to one earlier in the day and Arrow didn’t do too well. He wasn’t on his A game at any point of our training trip. I left pretty disappointed. A couple hours at home go by and I couldn’t shake the feeling of disappointment. I decided to go back to a pet store and do some more engagement training and to my surprise it was as if Arrow was a different dog! He was much more focused, ignored dogs so much better and overall just acted as he shouldn’t in this sort of distracting environment. Dogs have off days. Dogs have days they’ll pretend they don’t know what you are talking about. Today was a rough one for us, but we ended on a good note! Tomorrow is a new day!😊
Thete got his very first “big boy” light-weight cape/vest in the mail today. 😇🐩💖 Thank you so much to Emily M. Bailey for a wonderful product. 😇🎉 This is a fun galaxy-print cape/vest for Thete (almost 6 months old) - to simply become accustomed to, in order to help me carry some very small/light stuff in the future (next 6 months or so). 🤓☺️ Disclaimer: a vest, bandana, and/or ADA info cards for public education are *not* requirements for a service dog (SD) with public access (PA). 🤓
Thete is a service dog in training (SDiT) (KS does not have the same SD PA vs SDiT access opportunities). Thete is already consistently alerting me to 2 of my 4 medical alert needs (of our goal of 4 tasks), and he’s already performing 1 (of the 4) related medical response tasks for which I need help. 🤓🧠🐩😲 We’re at least 18 months away from Thete possibly providing light-mobility/counterbalance for my dizzy spells (in addition to my cane), **IF** the orthopedic vet OKs that possibility when Thete is old enough & big/healthy enough. 🤓🐩👍. #thete_sdit#servicedogintraining#servicepuppyintraining#servicepoodleintraining
Review time!!! @retrievinggoldgear I ordered this vest as part of the black Friday sale she had and I have to say I am A M A Z E D! She made it to fit Athena while she grows, which is helpful because she's growing so fast I can't keep up! Her order updates helped ease my anxiety and overall made for very efficient communication. Very well made, sturdy, and cute to boot! I'm in love with this vest, thank you so much for being an amazing shop 💙
day 27 of #100daysofdogtraining — ~the first video is us working on his pose leash walking and “down” cue (while walking & with distractions)
~the last picture is after a panic attack ~i didn’t get this on video....but he was amazing
~he rushed off his bed and was alerting/interrupting behaviors left and right
~he went straight into dpt like we’ve practiced
~super proud of this hardworking pup
Meet Duke & Max:
Duke is an almost 1 year old golden retriever from Golden Opportunities for Independence. He will be 1 on December 18th and is training to be a very special lifesaver. Max is Dukes best friend who is highly allergic to tree nuts and peanuts. Even the dust could spike an anaphylactic reaction, putting Max in a life or death situation. Duke has been training since he was 8 weeks old and will continue for 2 years with GOFI ‘s dedicated trainers. Duke will be able to alert Max to these nuts, carry life saving medication, and get help if needed. Having such a severe allergy can definitely limit your joy of going out and having fun, because you never know what you may come across. With Duke by Max’s side we already see confidence and a sense of freedom he didn’t have before. •
“I’m tired.” For many years this was my response when people asked me how I was. Up until recently, I always felt the need to justify why: mental illness that made me lethargic and episodes that zapped my energy, Lyme disease, autonomic dysfunction, chronic fatigue disorder, medications that made me drowsy.
Like many people with chronic illness or a disability, my “tired” doesn’t just mean I stayed up late or didn’t get enough sleep. It meant I am inexplicably, always, fatigued by a tiredness that plagues my body and brain.
Take a nap, people say. Recharge. But as many of you know, napping is not always the powerful restorer of energy it should be when your body is constantly in a state of depletion. It is a difficult burden to bear.
I slept through most of high school and college (see above ☝️) to the point where my doctors believed I was narcoleptic. Even when I was diagnosed with reasonable things to explain the constant fatigue, the toll of always being tired refused to let up.
Recently, I went to a group session at my outpatient program. We talked about the symptoms of our disease in great length - the only place where most of us, myself included, feel safe enough to talk honestly about the experiences we have due to this illness. “She is always sleeping,” a mother of a fellow patient said. “Needing more rest than most people usually do is not a bad thing,” my doctor said. “It just means the body and brain are working harder to stay afloat.” How true this is. Indeed, I have stopped saying why I am tired. I simply say, “I need to rest.” Full stop. I need rest, and I need you to respect that.
I cannot assume to know your experience or why you are tired or what causes your fatigue, but I do know that I have spent many years feeling ashamed for it, and I know that I am not the only one.
No more. Today, I give myself permission to rest. And tomorrow. And the next day. And whenever it is needed.
If you need a reminder, this is for you: may you have permission to rest, too.